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Sectors: Citizenship, Health, Research

Beneficiaries: Administrations States, Local and Regional authorities, Research centres, Universities

Regions: European Union

Category: Call for proposals

References:

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Amount:

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Responsible: European commission

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Amorce:

The global objective of this pilot project is to set up a registry of rare congenital malformations as a part of rare diseases national registers.

Priorities and funded actions:

Objectives
– To provide an example of how to extend an existing birth defects registration and surveillance system to a rare diseases registration system;
– To provide a model for exploring whether a birth defects registry can be extended to form a rare diseases registry;
– To contribute to the development of an EU Platform on Rare Diseases Registration to provide a common access point to data collections on rare diseases across Europe and to be compatible with platform tools.